You just found out you need to follow the low iodine diet for radioactive iodine scans and/or treatment.  Before this, you never even knew iodine was in food.  

Then, you find out that iodine is NOT on the nutrition label for foods.  And many ready made foods are high in iodine, so you will need to be cooking more.

What in the world should you buy at the store?  What will you make with those ingredients?  

In this article, we go over the lists of allowed and restricted foods on the low iodine diet, go through some FAQs, provide a shopping list to get you started, and link to recipe ideas to use those ingredients.  

Low Iodine Diet Basics

Here is a simplified outline of foods to enjoy and foods to avoid on the low iodine diet.  For more details, see my post on Low Iodine Diet Basics

Foods Low in Iodine to Enjoy

  • Fresh, frozen, canned, and dried fruits
  • Fresh, frozen, and unsalted canned vegetables
  • Unsalted nuts and nut butters
  • Unsalted canned or dried black, white, and garbanzo beans
  • Fresh meats and poultry
  • Sugar, brown sugar, jelly, honey, maple syrup
  • Egg whites
  • Potatoes (white and sweet) without skins
  • Popcorn
  • Homemade bread/safe bread brands
  • Pasta and rice
  • Coffee and tea
  • Vegetable oil, shortening, and margarine
  • Pepper and other spices and herbs
  • Soda, beer, wine, lemonade
  • Nut and oat milk
  • Homemade salad dressing
  • Dairy free chocolate
  • Hard lemon candies

Foods High in Iodine to Avoid

Many of these are the ingredients you should look for on a food label to avoid.  

  • Iodized Salt
  • Seasoning mixes with salt
  • Seasonings with salt in the name – onion salt, garlic salt, etc.
  • Fish or products from the sea, including seaweed, sea salt, carrageenan, kelp, dulse, agar-agar
  • Dairy products
  • Commercial breads with dough conditioners (iodate, iodide in the ingredients)
  • Vitamin or supplements containing iodine or high iodine ingredients 
  • Soy protein products, including soy beans, tofu, edamame, soy burgers, soy milk.
    • NOTE:  Soy lecithin and soy oil are ok as they do not contain soy protein
  • Egg yolks
  • Food dye red #3
  • Commercial protein shakes or nutrition supplements such as Ensure, Boost, and Glucerna
  • Most restaurant and processed foods
  • Blackstrap molasses
  • Chocolate with dairy
  • Potato skins
  • Rhubarb

Low Iodine Diet FAQs

Iodine in Food?

Iodine is found in food.  In some foods, it is naturally there from the soil,  including plant based foods as well as animal foods (meat) since that animal ate the plants. Iodine can also be added to food as a supplement or via residues from disinfectants on equipment. (1)

How Does My Body Use Iodine?

Iodine is used by the thyroid gland for making thyroid hormones.  Thyroid hormones have MANY functions in your body and can influence every cell in your body.  These include:

  • Effects your metabolism, including how your body burns calories – this affects your weight as well as your energy levels
  • Regulating your heartbeat
  • Regulating body temperature
  • Can affect digestion speed – meaning too much can cause diarrhea, too little constipation

Why do I Need a Low Iodine Diet?

A low iodine diet (LID) is used before radioactive iodine treatment to make the body “iodine hungry”. (1) The basic idea is if you deprive your body of iodine, any remaining thyroid cells (specifically thyroid cancer cells) will be very hungry and aggressively take up the radioactive iodine when you receive treatment.  This should make the treatment more effective.

How do I know if Iodine is in a Food?

There is not really a great way to know the iodine content of food.  Iodine is not required on nutrition labels and is not regularly measured in whole foods.

Most processed foods in the United States do NOT contain iodized salt.  However, manufacturers are NOT required to state on the label if they use iodized salt or not.  LIDLife has extensive lists of manufacturers they have contacted about what salt they use.

I have contacted some manufacturers, including for any items on this list.  However, please note that a manufacturer stating they use non iodized salt DOES NOT mean all of their products are safe.  They may contain other ingredients.

For example, Sara Lee Breads use non iodized salt.  But, many of their products use iodate based dough conditioner, so you still cannot have many of their products. 

Any other foods I should avoid? 

While you need to avoid foods high in iodine, you also need to avoid foods that could interfere with your body’s ability to take up the radioactive iodine. Soy products and cruciferous vegetables (spinach, broccoli) may decrease your body’s ability to absorb iodine. (2) (1) So avoid soy bean products (soy oil and lecithin are ok), and try to not over do the spinach and broccoli. 

Low Iodine Diet Shopping List

Here is a Low Iodine Diet shopping list, broken into categories.  If you are looking for a way to use these ingredients, check out my Simplified Low Iodine Diet Toolkit

Fruits 

  • Lemons
  • Limes
  • Oranges
  • Pineapple
  • Strawberries
  • Apples
  • Bananas
  • Frozen berries
  • Grapes
  • Applesauce
  • Raisins
  • Melons

Veggies

  • Baby spinach
  • Tomatoes
  • Cilantro
  • Garlic
  • Onion
  • Bell pepper
  • Lettuce
  • Potatoes
  • Sweet potatoes
  • Green Beans
  • Ginger
  • Radishes
  • Zucchini
  • Broccoli
  • Brussels sprouts
  • Mushrooms

Cold/Dairy Alternatives

  • Liquid egg whites
  • Elmhurst oat milk or almond milk
  • Orange juice
  • Forager Project Cashew Yogurt
  • So Delicious Coconut Yogurt
  • Kite Hill Dips
  • Sabra Hummus
  • Wholly Guacamole
  • Earth Balance Buttery Soy Free Spread

Bread/Baking/Grains

  • Plain oats
  • Quaker Instant Oatmeal Packets
  • Mission Flour Tortillas
  • Thomas Bagels
  • Nature’s Own 100% Whole Wheat Bread
  • Matzo Crackers
  • Pasta
  • Basmati Rice
  • Qunioa
  • Jell-O
  • Dairy free chocolate chips (Enjoy life or Nestle Toll House Allergen Free)
  • Brown sugar
  • Honey
  • Nutritional Yeast (cheese substitute)

Meat

  • Fresh chicken
  • Fresh beef
  • Fresh pork
  • Fresh turkey

Boxed/Canned

  • No salt added black beans
  • No salt added garbanzo beans/chickpeas
  • No salt added canned diced tomatoes
  • No salt added canned tomato sauce
  • Herbox Sodium Free Chicken/Vegetable/Beef broth or bouillon cubes
  • Coconut milk
  • Jam/jelly
  • Tahini
  • Unsalted nut butter 

Spices/Condiments

  • Kosher or plain salt
  • McCormick’s taco seasoning
  • Black Pepper
  • Balsamic vinegar
  • French’s mustard
  • Olive or canola oil

Snacks/Sweets

  • Popcorn kernels
  • Power Up Trail Mixes
  • Oreos
  • Gummy Bears
  • Swedish Fish
  • Junior Mints
  • Enjoy Life chewy bars and protein bites 
  • Sugar free lemon drops (for after RAI)

Low Iodine Recipe Ideas

Need some ideas for what to cook on your low iodine diet?  My Simplified Low Iodine Diet Toolkit has 3 weeks of meal plans complete with recipes and grocery lists.  

For recipes on the blog, try these:

Would you like a free printable of this shopping list as well as a blank list to fill in for yourself?  Enter your email below and it will be delivered to your inbox!

If you are looking for a list of low iodine diet snacks, you are undergoing treatment or monitoring for thyroid cancer.  You may be stressed, confused, depressed, tired, overwhelmed, not feeling well, and more.

You have come to the right place.  By filling out the information here, you can have this list of over 50 snack ideas emailed to you.

But before grabbing your list and moving on, there are important things to consider about snacking while on the low iodine diet.  

This article will help you understand when you may need low iodine diet snacks during treatment, why to be careful with snacking, and how to incorporate low iodine snacks within a balanced diet PLUS your list of over 50 low iodine diet snack ideas.

Some links on this site are affiliate links, meaning I may receive a commission at no cost to you if you click on them. As an Amazon Associate, I earn from qualifying purchases.

What is the Low Iodine Diet?

A low iodine diet (LID) is used before radioactive iodine treatment to make the body “iodine hungry”. (1) The basic idea is if you deprive your body of iodine, any remaining thyroid cells (specifically thyroid cancer cells) will be very hungry and aggressively take up the radioactive iodine when you receive treatment.  This should make the treatment more effective.

For more on the low iodine diet and foods low and high in iodine, read the Low Iodine Diet Basics post.

Do I need Low Iodine Snacks?

Not everyone is a snacker naturally.  Maintaining your typical eating pattern during the low iodine diet can be beneficial for weight maintenance as well as feelings of normalcy in your life.

However, there are a couple reasons why you may want or need snacks during the low iodine diet, even if you normally don’t like to snack.

  1. Decreased appetite.  If you are withdrawing from your thyroid hormone, you may experience decreased appetite.  Large meals seem overwhelming when you are not hungry.  Snacks throughout the day can maintain your overall calorie intake when you don’t feel hungry for meals.
  2. Fatigue.  Similarly, being hypothyroid makes you very tired.  Cooking a whole meal is exhausting.  Having quick snacks ready can make sure you eat when too tired to cook as well as give you a good boost of energy for your day.
  3. Depression and/or anxiety.  Being diagnosed with cancer is enough to create depressed or anxious feelings in people.  While you are hypothyroid, you may feel even more emotional or not yourself.  Some people turn to snacking during these times.
  4. Nausea.  Many people experience nausea after taking radioactive iodine.  Small snacks eaten frequently are better for nausea than eating larger, less frequent meals. 
  5. Difficulty finding foods to eat.  The low iodine diet is not particularly easy to follow.  Finding a few snacks you can eat regularly may be easier for you than figuring out regular meals.  
  6. Good for social gatherings.  Going to parties or getting together with friends can be difficult while on the low iodine diet.  It is often easier to bring your own food.  A few small snacks is easier to bring along rather than a full blown meal.

Being Careful with Snacks

Snacking, especially excessive snacking, can easily lead to eating too many calories and weight gain.  You should always listen to your hunger and fullness cues as much as you can.  

It is also best to find other ways of coping with your emotions than with food.  You are experiencing valid feelings.  Seeking out counseling, journaling, positive affirmations, and talking with trusted friends and family can be beneficial ways to deal with emotions rather than eating.

If you are withdrawing from your thyroid hormone, you may be at risk of weight gain.  So keeping track of your hunger and fullness cues will be important. It will be difficult to assess if you are eating a normal amount for you. Also, if you are hypothyroid, your normal diet may be too high in calories.

With that being said, many people lose weight due to the strictness of the diet and not feeling well being so hypothyroid, so it really is a balancing act.

Balanced Low Iodine Diet with Snacks

So how can you eat a healthy, balanced low iodine diet while eating snacks?

Like your regular diet, you will need to really listen to your body for hunger and fullness cues.  If you feel “hungry”, evaluate if there are other reasons behind that feeling, such as:

  • Thirst
  • Anxiety
  • Boredom
  • Increased needs from exercise
  • Distracted
  • Depressed
  • Previous meal was low in protein or fat or high in sugar
  • Tired

Next, decide if you need a meal or snack.

Balanced Low Iodine Meals

Eating balanced meals is key to avoiding excess snacking.  You should try to have all of your meals include a good source of protein, carbs, fat, and fiber.   Here are a couple example meals.

Sample Low Iodine Breakfast:

  • Oatmeal with berries
  • Toast with unsalted nut butter

Sample Low Iodine Lunch/Dinner:

  • Whole wheat pasta tossed with olive oil, basil, pine nuts, and roasted veggies
  • Roasted chicken breast
  • Side salad with homemade dressing

Healthy Low Iodine Diet Snacks

A good snack includes protein and fiber, as both of these will keep you feeling full longer. 

Protein rich foods include:

  • Egg whites
  • Nuts and seeds
  • Nut and seed butters
  • Beans
  • Dairy free yogurt

Fiber rich foods include:

  • Whole grains
  • Fruits
  • Vegetables
  • Dried fruit

Here is your list of low iodine diet snacks.  You will notice I indicate which groups are high in protein or fiber.  But even in the high fiber groups, I try to give suggestions to add protein, such as a nut butter sandwich.

Low Iodine Bread and Grain Based Snacks (Fiber Rich):

  • Unsalted nut butter and jelly sandwich 
  • Toast with nut butter and banana
  • English Muffins
  • Bagel with Kite Hill Cream Cheese Alternative
  • Popcorn, unsalted with no butter.
  • Cereal (plain or with non dairy milk)
  • Matzo crackers with hummus, guacamole, unsalted nut butter, or Kite Hill dips
  • Rice Cakes (Quaker)
  • Quaker Instant Oatmeal packets
  • Corn tortilla chips (homemade) with hummus, guacamole, homemade salsa, or Kite Hill dips
  • Muffins (Vegan Zucchini Muffins)
link to kite hill cream cheese alternative on amazon
link to manischewitz matzos on amazon
link to quaker instant oatmeal flavor variety box on amazon

Low Iodine Fruit and Vegetable Snacks (Fiber Rich)

  • Fresh Fruit
  • Canned Fruit
  • Applesauce
  • Dried Fruit
  • Fruit Leather
  • Orchard Valley Harvest Dark Chocolate Dried Fruit
  • Fresh veggies with hummus, guacamole, unsalted nut butter or Kite Hill dips
  • Wholly Guacamole
  • Juice

Low Iodine Protein Rich Snacks

  • Sabra Hummus
  • Rosarita Refried Beans with corn tortilla chips (homemade)
  • Scrambled Egg Whites on an english muffin
  • Unsalted nuts
  • GourmetNut Power Up Trail Mixes
  • Orchard Valley Nuts and Trail Mixes (select flavors)
  • Unsalted sunflower seeds
  • Enjoy Life chewy bars and protein bites
  • Energy Balls (Healthy Apricot Almond Butter Energy Balls)
  • Dairy Free Coconut Milk Yogurt Oui by Yoplait
  • So Delicious Dairy Free Coconut Milk Yogurt
  • Forager Project Organic Cashewmilk Yogurt
  • Cocoyo Coconut Yogurt
  • Kite Hill Yogurts

Low Iodine Candies and Sweets

  • Jolly Rancher candy and gummies
  • Mott’s fruit snacks
  • Smarties
  • Great Value peach rings
  • Skittles
  • Black Forest gummy bears
  • Haribo gummy bears
  • Mike and Ike
  • Starburst
  • DOTS
  • Swedish Fish
  • Oreos
  • Enjoy Life Dark Chocolate Morsels

Low Iodine Frozen Treats

  • Ben and Jerry’s Non Dairy Ice Cream (select flavors)
  • So Delicious Dairy Free Coconut Milk Frozen Dessert (select flavors)
  • Talenti Sorbet (select flavors)
  • The Frozen Farmer Strawberry Sorbet
  • Great Value Sorbet
  • Outshine Frozen Fruit Bars
  • BlueBell Bullets
  • Popsicle Brand Ice Pops with Natural Colors

Conclusion: Low Iodine Diet Snacks

Snacks can be an important part of your low iodine diet.  They can help you deal with side effects of thyroid hormone withdrawal, cancer diagnosis, radioactive iodine, and isolation.  

It is important to eat a balanced diet to prevent gain during the low iodine diet.  Remember, focusing on hunger signs and eating snacks with both fiber and protein will help you maintain your weight.

If you’d like more specific recipes for snacks, check out our Simplified Low Iodine Diet Toolkit, which has a bonus section of snack recipes.

If you’d like a free PDF list of snacks, enter your email below.

Receiving a thyroid cancer diagnosis comes with a lot of emotions and fears. A big concern for most people is weight gain after their thyroid removal. 

There are lots of stories of thyroid cancer survivors struggling to control their weight.  I even like to say that I’m not really in control of my weight, my endocrinologist is.

I’ve heard survivors say, “I gained 40 lbs with no change to my diet after thyroid removal,” and “Weight loss is an uphill battle.”

But is that true?  Does everyone gain weight after their thyroid is removed?

This post will outline some reasons behind possible weight gain, the data on how often it happens, and what steps you can take to avoid it.

Thyroid hormones have MANY functions in your body and can influence every cell in your body (1).  These include:

  • Affect your basal metabolism, which is the basic calories your body burns to live (breathe, be awake, heart pump) outside of physical activity
  • Regulate your heart rate
  • Regulate body temperature
  • Regulate bone health and muscle movement

There are three different thyroid hormones you need to know about.

  1. Thyroid stimulating hormone (TSH) is made by the pituitary gland in the brain.  As its name suggests, this hormone stimulates the thyroid to make T3 and T4.
  2. Triiodothyronine (T3) is the active form of thyroid hormone.  The thyroid makes less of this hormone than T4.  It stimulates receptors in cells to increase functions, such as increase heart rate, increase body temperature.
  3. Thyroxine (T4) is the inactive form of thyroid hormone and lasts longer in your blood.  The thyroid makes more of this hormone than T3.  T4 converts to T3 inside the cells of the body. This conversion happens with or without a thyroid.

Measuring and Monitoring Thyroid Levels

The levels of your thyroid hormones – known as hypothyroidism or hyperthyroidism – indicate the effect on your metabolism. These levels are measured with your labs (blood tests).  

The blood tests will generally have the same name as the hormone they are measuring.  For T3 and T4, there are “total” tests and “free” tests, such as Total T4 and Free T4.  The “free” tests measure the levels of the hormone not bound to protein because these bound hormones aren’t usable by the body. (2

If you have thyroid cancer, your doctor may also monitor your thyroglobulin.  Thyroglobulin is a storage form of thyroid hormones only made by thyroid cells.  After total thyroidectomy and other treatment, it should stay the same or decrease.  An increase in thyroglobulin may mean there are still cancer cells in your body.  Always talk to your doctor about your labs.  (3)

Next, we will talk about what high or low levels of hormones mean.

Hypothyroidism

Hypothyroidism is when you have low levels of T3 and T4.  Because these hormones are low, you will have a high TSH, trying to get more T3 and T4 made.  

Hypothyroidism is generally associated with weight gain (4).  Other symptoms include:

  • Fatigue
  • Hair loss
  • Feeling cold
  • Constipation
  • Loss of menstrual cycle in women
  • Depression
  • Brain fog or forgetfulness
  • Muscle weakness or soreness.

Hyperthyroidism

Hyperthyroidism is when you have too much T3 and T4 in your body.  TSH levels will be low.

Hyperthyroidism is generally associated with weight loss (5).  Other symptoms include:

  • Rapid heart beat
  • Fatigue
  • Difficulty sleeping
  • Hair loss
  • Increased appetite
  • Tremor or shaking in your hands
  • Sweating

When You May Experience Hypo- and Hyperthyroidism

Some people are diagnosed with thyroid cancer due to an abnormality in their thyroid labs. But many people diagnosed find a nodule in their neck but have normal labs.

After partial or total thyroid removal, you may experience some hypothyroidism while your dose is adjusted.  If you have a partial thyroidectomy, your thyroid may adjust and make enough hormones on it’s own without medication.  Your doctor may want to monitor you to see if that happens.  

If you have a total thyroidectomy, there is a science and art to getting your dosage right, so it may take awhile.  The science is there are loose guidelines of how much to give for your bodyweight.  However, each patient is unique, so it will take adjusting.

Prior to radioactive iodine treatment, doctors create a hypothyroid state in your body.  They do this by either stopping your oral thyroid medication or giving you thyrogen.  In both of these scenarios, your body makes more TSH, trying to stimulate any remaining thyroid (or cancer) cells.

For a few years after the removal of your thyroid, your doctor may keep you a bit hyperthyroid – give you more thyroid medication to keep your TSH level close to 0 (6).  This TSH suppression is to try and prevent the growth of any remaining cancer cells.  How low and how long your TSH is suppressed will depend on the stage of your cancer as well as your body’s response to other treatments – surgery, radiation, etc. 

Thyroid Hormone Replacement

There are different forms of thyroid hormone replacement.  I am not a pharmacist, so I will just give the basics of what different kinds are available.   For more information, see the American Thyroid Association.

T4 Replacement

The most common type of thyroid replacement patients receive is T4 replacement or levothyroxine.  The most common name brands are synthroid, Levo-T, levothyroxine sodium, levoxyl, novothrox, unithroid.

The dosing is not always completely interchangeable between brands, so doctors and pharmacists recommend you try to stick to 1 brand.  If you take “synthroid”, you will always get the same brand.  If you take “generic”, different pharmacies may carry different ones of the other 5 brands.  However, if you stick with 1 pharmacy, they generally try to stay with the same brand.

Tirosint is a name brand of levothyroxine with less dyes and fillers for people with allergies to those ingredients. 

T3 Replacement

T3 is a short acting hormone and made in smaller amounts in the body naturally by the thyroid.  Most patients do not receive long term T3 medication because of the possible side effects.

When taking T3, you have too high a level of T3 in your blood initially and then it rapidly decreases.  You can have rapid heart rate, insomnia, and anxiety.  It decreases so quickly that you often have to take it several times a day.  Because you cannot have steady levels of thyroid hormone in your bloodstream, it can be hard to manage and monitor this treatment. 

Cytomel is the brand name of synthetic T3.

Combination T3 and T4 Replacement

There are two types of combination replacement: synthetic and natural.

Synthetic combination replacement is not very common.  The pill is taken once a day and has much more T3 than would naturally be in the body, so it has the same side effects mentioned above. 

There is a growing interest in combination therapy by taking T3 and T4 pills at the same time.  There are trials ongoing in the effectiveness in patients who don’t achieve good results on T4 alone.

“Natural” thyroid replacement is made from dried and powdered animal thyroid glands.  NP Thyroid, Armour, and Nature Thyroid are the common names.  These contain both T3 and T4.  However, the ratio of T3 to T4 varies from animal to animal and differs from the ratio found in humans.  It will also contain fillers or binders, so it is not 100% natural.

Weight Changes Prior to Thyroid Removal

Going into cancer treatment, you may have had some weight changes.

Maybe you had Hashimoto’s or Grave’s disease.  Maybe you had symptoms of your thyroid not functioning properly and that is how you were diagnosed.

Weight gain or loss is possible prior to thyroid cancer diagnosis and treatment.  However, it is possible you had no issues.

Weight Changes During Treatment

There are several aspects to thyroid cancer treatment that can have an effect on your weight.

Mental Health

It is important to acknowledge that mental health plays a big role in how we eat, which can affect weight.  Also, life post cancer diagnosis is full of mental health pitfalls.

You may experience depression or anxiety from the time of your diagnosis on.  These symptoms alone can lead to weight loss and gain respectively.  If your mental health problems are severe enough for medication, those carry side effects of weight gain as well.  

Never discount the effect your mental health may have on your weight and overall well being.

Surgery

Surgery in and of itself is a major event for your body.  Often, people have sore throats after being intubated for surgery.  Their body also feels tired and weak.  They may lose weight as they are not able to prepare and eat much. 

On the flip side, if you are less active than normal as you recover, you could gain weight.  Also, your thyroid hormone replacement medication may not be adequate during this time, making you prone to weight gain.

Preparing for Radioactive Iodine Treatment

If you have to undergo radioactive iodine treatment (RAI), there are definite chances for weight changes. The most common effect I have seen for myself and in hearing from others is weight loss.  I’ll talk about all the reasons for either.

Raising TSH

Before RAI, your doctor will want to raise your TSH to well above normal levels to help the cancer cells absorb the RAI (7).  If this is done by stopping your thyroid medication, you will become severely hypothyroid. 

This may seem like it would make you gain weight.  However, you become so extremely hypothyroid that you feel unwell and often don’t want to eat much.  While you could gain weight, it is likely you could lose as well.  

Another option is to receive injections of Thyrogen prior to RAI and not withdraw from medication.  Thyrogen quickly raises your TSH, allowing the RAI to be absorbed without you being hypothyroid for several weeks. 

If you receive Thyrogen, the likelihood of weight changes related to your TSH levels is minimal.

Low Iodine Diet

The low iodine diet is also generally a cause of weight loss for people.  You follow the low iodine diet whether you are withdrawn from medication or receive Thyrogen.

Weight loss is common because the diet eliminates most processed foods and is very restrictive.  Patients eat healthier and/or less just because of the limited options, generally leading to weight loss.

Radioactive Iodine Treatment

During active radioactive iodine treatment, weight loss is still likely.

You will continue on the low iodine diet for several days after receiving the radioactive iodine.

The side effects of radiation may make you feel physically unwell.

You may have salivary gland inflammation, leading to extreme mouth dryness and taste changes, again, leading you to eat less.

While in isolation, your food options are limited to what you purchased ahead of time.

However, if you feel fine and eat to pass the time during your isolation, you may gain weight if you are severely hypothyroid.  

Weight Changes Beyond Active Treatment

Theoretically, you never “stop” being treated for your thyroid cancer, as you will likely be monitored for a long time and require hormone replacement.

However, as you go into your new normal life, it is important to be aware of how your thyroid levels can affect your weight.

Issues with hyperthyroidism

As I mentioned above, your TSH may be suppressed for a few years after treatment, leading to hyperthyroidism.  This could lead to weight loss.

However, it is important to not allow yourself to “abuse” your hyperthyroid state and use it as an excuse to eat anything you want.  That will lead to weight gain.  

During this time, it is extremely important to learn how to balance your intakes, as your levels will be more normal later and you don’t want to have to adjust then.

Issues with hypothyroidism

As I mentioned above, your thyroid blood levels will take time to adjust after surgery.  Especially if you went off thyroid medication for RAI, it will take awhile for your blood work to normalize after restarting medication.

It is also important to note that changes in blood levels cannot be fully seen for 6-8 weeks after a medication change.  So even dose changes can take awhile to take effect.

This time may be prone to weight gain.  So again, it is important to learn to eat healthy, balanced meals and snacks in proportion to your needs.

Aging

The peak age for papillary thyroid cancer diagnosis is 30-50 years old. (8) This age span is also when our metabolisms tend to slow and we tend to be less physically active.  Combined with thyroid issues, you could be prone to gain weight if you are not careful.  Many people without thyroid issues gain weight during this time frame.

So, is Weight Gain Inevitable?

This is a tricky question.  The research out there is not conclusive.  Anecdotal evidence from talking with thyroid cancer survivors will lead you to think it is inevitable.  

The tricky part of looking at the research is not that thyroid cancer patients do not gain weight.  It is whether or not they gain significantly more weight than normal thyroid patients.  Studies often do not find that difference.

What does that mean?

It possibly means thyroid cancer patients tend to gain weight as they age, as do most adults unfortunately.

Patients with total thyroid removal did gain more weight than others in one study, even though they had normal thyroid labs with medication. Postmenopausal women had the most weight gain. (9

How to Avoid Weight Gain After Thyroid Removal

There are several steps I would recommend to avoiding weight gain after thyroid removal.

  • Take your medication as prescribed.  Take your medication every day, on an empty stomach, 30-60 minutes before eating.  Don’t take supplements within 4 hours.  By taking your medication regularly, you have the best chance of your labs being accurate.
  • Find a doctor you like and who listens to you.  You will be seeing your endocrinologist on a regular basis.  Make sure you feel comfortable with him or her and can discuss any problems.
  • Talk to your doctor about other options.  If you still don’t feel normal, talk to your doctor about measuring your T3 or other hormones.  Maybe you would benefit from supplemental T3.  Maybe another hormone or vitamin level is off in your body.
  • Stay on top of your lab work.  If you start noticing a change in how you feel, talk to your doctor about checking labs.
  • Recognize when other things are changing in your body.  Are you getting older?  More sedentary?  Are you going through menopause?  Other health issues?  Mental health changes?  Realize that your thyroid medication is not the only reason you may be gaining weight.
  • Talk to your doctor at the first sign of weight gain.  Weight gain is always easiest to take care of when it is small.  Wouldn’t you rather lose 10 pounds than 50 pounds?  .
  • Live a healthy lifestyle.  See my post on Diet After Thyroid Removal for more on this.
  • See a registered dietitian.  Dietitians are THE nutrition experts and will have the best tools to help you with your diet. Many endocrinologists have dietitians as part of their practice.  Or find your own dietitian.  I have some listed on my resources page or look for one in your area at Academy of Nutrition and Dietetics

Have you been diagnosed with papillary or follicular thyroid cancer?  Have you been told to follow a low iodine diet before your radioactive iodine treatment?  Are you confused?  Why wasn’t surgery enough?

I know I was confused after my diagnosis.  And then when they told me about the low iodine diet, I quickly got more confused.  I was getting a master’s degree in nutrition at the time of my treatment, but I still wasn’t sure about the next steps.

How do you know how much iodine is in your food?  What can you look for on the label?  What can you eat?

Have no fear.  This article will walk you through all the steps so you understand more about iodine, the low iodine diet and its relationship to radioactive iodine treatment, and sources of iodine in the diet.

What is Iodine?

Iodine is a trace element you may remember from the periodic table.  It can be used as a disinfectant; your skin turns yellow when you use it.

Iodine is also found in food.  In some foods, it is naturally there from the soil the plant was grown from.  This could also include plant foods an animal eats and then YOU eat the animal.  Iodine can also be added to food as a supplement or via residues from disinfectants on equipment. (1)

How Does My Body Use Iodine?

The thyroid gland uses iodine to make thyroid hormones.  Thyroid hormones have MANY functions in your body and can influence every cell in your body.  These include:

  • Effects your metabolism, including how your body burns calories – this affects your weight as well as your energy levels
  • Regulating your heartbeat
  • Regulating body temperature
  • Can affect digestion speed – meaning too much can cause diarrhea, too little constipation
  • Can affect menstrual cycles in women
  • Regulates bone health and muscle movement
  • Important for brain development and brain functioning

Iodine is also crucial in brain development for fetuses and small children.  Iodine deficiency is the leading cause of brain damage and intellectual impairment worldwide. (2)

Goiter is the physical manifestation of a diet with not enough iodine. The thyroid gland gets bigger – trying to absorb more iodine from the blood – and sticks out of the neck. Goiter is not common in most developed countries today.

Hopefully that list shows you how important iodine is for your body.  However, most of us in developed countries don’t think about iodine intake.  Why?  Because our diet is fortified.

Why do I Need a Low Iodine Diet?

A low iodine diet (LID) is used before radioactive iodine therapy to make the body “iodine hungry”. (1) The basic idea is if you deprive your body of iodine, any remaining thyroid cells (specifically thyroid cancer cells) will be very hungry and aggressively take up the radioactive iodine during treatment.  This might make the treatment more effective.

What if My Doctor Did NOT Tell Me to Follow a LID?

The American Thyroid Association does recommend a LID for 1 to 2 weeks before radioactive iodine treatment.  However, there is conflicting evidence. (3)

Some studies have shown people to have less iodine in their urine and greater uptake of the radioactive iodine when they consumed a LID before treatment.  However, there is no evidence showing if this changes the rates of cancer recurring later or death.  

Since there is not strong evidence, some doctors do not require patients to follow a LID prior to radioactive iodine treatment.  You should discuss this with your doctor and feel comfortable with his or her recommendations.

How do I know if Iodine is in a Food?

That is the question of the year.  There is not really a great way to know the iodine content of food.  Iodine is not required on nutrition labels and is not regularly measured in foods.

Most processed foods in the United States do NOT contain iodized salt.  However, current laws do not require manufacturers to state on the label if they use iodized salt or not.  As such, they could change what they use at any time.  With the supply chain issues beginning in 2020, the FDA gave permission for substitutions without changing labeling. (1

Natural Sources of Iodine in Food.

Iodine is found in the ocean and in the soil in some parts of the world.  So seafood, sea salt, and any other food from the ocean will naturally be high in iodine.  

Plant products, such as vegetables and grains, grown in iodine rich soil are higher in iodine than plants not.  Areas near oceans or with clay-rich alkaline soils have iodine rich soil. (4)  This is only useful if you are buying local produce.  Most people do not know the origin of their plant foods and the iodine level of the soil.

Iodine is also often added to products used in caring for animals, so may be in animal proteins that you consume.  

Added Iodine

Iodized salt is probably the most familiar food with iodine added.  But there are other ways iodine can be added to a food, and sometimes not intentionally.

Iodine is a food safe disinfectant and can be used in food processing.  Dairy processors frequently use iodine disinfectants  Dairy products are one of the highest sources of iodine in the American diet according to a Total Food Study. (5)

Dough conditioners added to many bread products have iodine.  These are another significant source of unintentionally adding iodine to our diet. 

Why is Iodine in Salt?

Natural, unprocessed foods are not incredibly rich in iodine.  Iodine in food can vary by the iodine content of the soil where the food came from.  Historically, iodine was often lacking in people’s diets, leading to goiter in adults and brain damage in children.

In order to increase iodine intake, salt was fortified with iodine starting in the 1920’s. (5)  Policy makers chose saltbecause it was inexpensive, consumed by everyone, and intakes don’t generally vary by season.

After iodized salt became prevalent, rates of goiter and iodine deficiency decreased in the United States.  Many countries worldwide mandate the iodization of salt.  The United States does not.

Beyond Iodine

While you need to avoid foods high in iodine, you also need to avoid foods that could interfere with your body’s ability to take up the radioactive iodine.  Soy protein based foods and cruciferous vegetables, such as broccoli and cabbage, may have this effect. (6, 1)

Low Iodine Foods List

Here is an outline of foods to enjoy, foods to eat a moderate amount, and foods to avoid.  I have compiled this list from resources from Thyca, the American Thyroid Association, and Memorial Sloan Kettering Cancer Center.  I hope this can be a “one stop shop” for you.  

Final Thoughts

Iodine is a necessary nutrient in a normal, healthy diet. It helps form thyroid hormones, which effect every cell of the body.

When prepping for radioactive iodine treatment, you may have to follow a low iodine diet. Your body becomes iodine hungry and may absorb more radioactive iodine.

Iodine is not routinely measured as a nutrient in foods nor are manufacturers required to label their products that contain iodine.  This can make following a low iodine diet tricky.

I’ve listed above foods low in iodine to enjoy, foods high in iodine to limit, and foods to avoid on the low iodine diet.  If you’d like a streamlined PDF of this list along with some tips for label reading, enter your email address below and it will come to your inbox.

Radioactive iodine treatment isolation is hard. You don’t feel well, are tired, and are lonely. The low iodine diet makes eating challenging. The world is still reeling from your surgery and cancer diagnosis in the first place. The treatment itself can have unpleasant side effects.

However, it’s all in how you look at it. Radioactive iodine treatment isolation does not have to be the worst 5-8 days of your life.

Today, I’m sharing 7 tips that helped me get through my radioactive iodine treatment isolation periods.

Focus on the Positive

Mindset is at least half the battle with isolation. There are plenty of negatives in your life going into isolation. I’ve listed just a few above.

But if you focus on all the negatives, it could be the most depressing time. Try to find things to be positive about. Like what? Here are some examples:

  • Are you an introvert? Hello alone time.
  • You have an excuse to work on time consuming projects.
  • Catch up on sleep.
  • You only have to do one radiation treatment, not multiple treatments like other cancers.
  • Thyroid cancer has a high survival rate.

Each individual person can find something positive for their situation. When I had my radioactive iodine treatment, I was in grad school. My thesis committee had decided I needed to re-do the entire data set for my project. That was hours of just sitting at my computer re-coding a giant excel spreadsheet. Wouldn’t you know, during my isolation, I had all those hours to sit and do it, with nothing else pressing on my time and attention. That doesn’t mean it was “fun”, but definitely not as stressful if my regular life was also happening right then.

Be a Little Selfish

Other than being careful not to expose others to radiation, you do not need to put others first during this time. What to do I mean?

Choose a room with a comfy bed or couch. Choose a room with a TV. Take over the passwords for the video streaming services. Found a low iodine treat you love? Don’t share it with others. You are the most important thing right now. Focus on you.

Indulge

It can be hard to indulge on the low iodine diet, but you can do it. I got a giant bag of gummy bears and ate the whole thing. I binge watched Jane Austen movies.

Craving a fountain diet Coke? Order a DoorDash.

Bored? Sign up for a new video streaming service for a few days.

Do some online shopping.

Watch cat videos on youtube.

Do whatever makes you feel good. Even if it seems frivolous.

Set a Fun Goal

Focus on something you want to do but never have time to do. Be creative!

  • Watch all of a TV series or movie series.
  • Read all the Harry Potter books, War and Peace, you get the idea.
  • Do 10 push ups everyday. (Or increase your push ups every day).
  • Try new kinds of gummy candies.
  • Learn a language. (or a bit at least)
  • Complete a house project or craft project.
  • Learn a new skill, like knitting, painting, etc. YouTube is full of how-to videos.

Reach Out

Radioactive iodine treatment isolation is…well…isolating. Even introverts get lonely after awhile. Your friends and family are likely looking for ways they can help but don’t know what to do. Reach out. Connection will help the time go by and help you feel less alone.

Set up phone or zoom calls to catch up with people. Ask someone to bring lunch to your door. Eat on your porch and chat while they sit in the front yard. Ask a friend to pick up some supplies you may need. Don’t think you have to do this on your own.

Hygiene

You are strongly encouraged to have good hygiene post radioactive iodine. The iodine comes out in your bodily secretions – saliva, sweat, urine. Showering daily and frequent tooth brushing are included in thyca.org’s list of recommendations.

However, I mean a step beyond this. Put on some comfortable but decent clothes. Do your hair. Maybe put on make-up. The more “normal” you feel, the better you will feel. If you are sitting around in pjs, you will feel tired and down all the time. Perk yourself up a bit.

Get Out

Just because you have to be in isolation, does not mean you have to stay inside 4 walls. Go for a walk. Get some sunshine. Breathe fresh air. Be cautious in staying away from people, obviously. But going outdoors can be a real boost.

Get creative in where you go. Walk in a park or different area than you normally do. Once I was clear to leave my apartment but still needed to be cautious, I went to a movie in the middle of the day. I got there right as the movie started to ensure I could pick a seat a distance from others. It was fun.

There are plenty of ways that radioactive iodine treatment isolation is hard. Focus on being creative, helping yourself, and having fun as best you can. The time will go much quicker!

Eating out at a sit down restaurant or fast food is tricky when on the low iodine diet. Fast food is incredibly convenient and popular. However, you have limited abilities to customize your order for the low iodine diet at fast food restaurants, making it even more tricky. Check out my previous post for general tips on eating out and low iodine diet (especially fast food).

I have reviewed the online menus available from 11 of the top fast food restaurants in the United States. Below is my list of what you could probably eat. Please note that menus and ingredients change all of the time. This was accurate at the time of writing. Please double check menus yourself and read labels when available.

Also, there might be more you could eat. However, most online ingredient lists often list “salt” with no further specification. In those instances, I erred on the side of not being able to eat it. You could dig deeper and find more information if it is very important to you.

McDonalds and Low Iodine

McDonald’s is the #1 fast food restaurant in the United States. But their low iodine diet friendly menu items are very minimal. However, their menu only lists “salt” as an ingredient. If you could find more specific information, that might open up options.

  1. Fresh fries with no salt. You can ask for fresh fries anytime you go to McDonald’s. Ask for some fresh fries that are dumped onto your tray rather than the regular bin where they are salted. Bring your own non-iodized salt from home, otherwise it is just plain potatoes.
  2. Beverages – all of the sodas, lemonade slushes, iced tea, juice, and black coffee are low iodine friendly. Stay away from smoothies, shakes, and coffee drinks that have added milk.

Starbucks and Low Iodine

As a non-coffee drinker, I was surprised to learn that Starbucks is #2 on many lists of top fast food restaurants. Their menu was also quite limited in options. The big catch to Starbucks menu was they specifically list “sea salt” on most items. You could monitor if that changes over time. They also sell a variety of pre-bottled drinks that you can check the labels based on availability.

  1. Starbucks Refresher Beverages – Many of these are allowed. Avoid ones that have coconut milk – their ingredient list includes sea salt. Kiwi Starfruit, Kiwi Starfruit Lemonade, Mango Dragonfruit, Mango Dragonfruit Lemonade, Strawberry Acai, Strawberry Acai Lemonade, Very Berry Hibiscus, Very Berry Hibiscus Lemonade.
  2. Lemonade.
  3. Brewed Coffees – including Americano
  4. Hot Teas – not lattes.
  5. Steamed Apple Juice
  6. Cold Brew Coffee – plain.
  7. Iced Tea – not lattes.
  8. Whole Fruit.
  9. That’s It Fruit Bars

Chick-Fil-A and Low Iodine

I love Chick-Fil-A. Waffle fries are a weakness for me. However, sadly, they are not allowed on the low iodine diet. Other restaurants, such as McDonald’s, use cut potatoes for their fries. Waffle fries are a mashed and pressed product, so salt is added in that process. Darn. For the salads, bring your own dressing from home.

  1. Sodas, lemonade, iced tea, and coffee.
  2. Egg white from the egg white grill sandwich.
  3. Side Salad – without the cheese or crispy bell peppers
  4. Fruit Cup
  5. Market Salad – without the mean, cheese, and nuts.
  6. Spicy Southwest Salad – without the chicken, cheese, pepitas, and tortilla strips.

Taco Bell and Low Iodine

Taco Bell is a very divisive place. I feel like people either love it or hate it. I have nacho loving kids, so I love it for a quick, cheap lunch on the go. Low iodine options are limited.

  1. Sodas, lemonade, iced tea, Breeze drinks, coffee.
  2. Tostada Shell.
  3. Crispy Taco Shell.
  4. Vegetables – lettuce, tomato, onion

You could try to build a tostada with just vegetables and bring your own dressings from home.

Burger King and Low Iodine

I grew up in a divided house. My mom loved McDonald’s. My dad loved Burger King. This menu is tricky because at the time of writing, they did not list ingredients on their website. They also use whole potatoes for fries, but spray them with a mixture that includes salt to make them more crispy.

  1. Sodas, lemonade, iced tea, coffee.
  2. Garden Salad – no dressing, no nuts, no meat,
  3. Market Salad – no dressing, no nuts, no meat

Subway and Low Iodine

With the Eat Fresh logo, you would think Subway would have lots of options. Unfortunately, that isn’t the case.

  1. Sodas, lemonade, iced tea.
  2. Salad using all of the fresh vegetables, bring your own dressing.

Wendy’s and Low Iodine

I can’t go to Wendy’s without getting a Frosty, so it is pointless for me on low iodine. But there are a couple options if you can avoid the Frosty.

  1. Sodas, lemonade, iced tea, coffee.
  2. Plain Baked Potato.
  3. Apple Pecan Salad – no chicken, no cheese, no nuts
  4. Oatmeal? – they list cream as an ingredient, but I’m not sure if this is something they add in store. You could ask.
  5. Fries – ask for fresh fries poured onto your tray with no salt.

Dunkin Donuts and Low Iodine

Again, I don’t drink coffee so this was not on my radar. Dunkin’s menu was very limited. Basically you could have plain coffee or tea. None of the food options seemed viable.

Domino’s and Low Iodine

Pizza is not a low iodine friendly fast food. Domino’s salads would be fine if you remove the cheese and croutons.

Panera and Low Iodine

With so many salads on the menu, I had high hopes for Panera. For most of the salads and bowls, it seemed to me that you were taking so much off the item that it wasn’t worth it. It likely would be easier to see if they would build you a fresh vegetable salad.

  1. Frozen Strawberry Lemonade
  2. Coffee, Tea, Iced Teas, Flavored Lemonades, Prickly Pear Hibiscus Fresca.
  3. Fuji Apple Salad – no chicken or cheese
  4. Strawberry Poppyseed Salad – no chicken
  5. Green Goddess Salad – no bacon, onions, chicken, or egg yolks
  6. Fruit Cup
  7. Whole Fruit

Chipotle and Low Iodine

Chipotle happened to be listed 11th on the top fast food restaurants on the list I looked at. But if you were hoping for a best for last list, you got it. Chipotle lists right on their website that they only use KOSHER salt. Hooray for low iodine eaters! This means you can basically eat ANYTHING on the Chipotle menu minus the cheese and sour cream. Truly the best for last. And thank you, Chipotle for being clear on what ingredients you use, especially the salt.

I hope this list helps you in your low iodine journey. It can be very discouraging to look at these lists. Eating fast food on the low iodine diet is a challenge you may decide is not worth it. I know when I was on low iodine, I made a mental list of the fast foods I wanted to eat first when I was done. It was basically anything with cheese!

When you are on a restricted diet for an allergy, diagnosis, or medical procedure, eating out can be tricky. But life doesn’t stop around you. There will be times you will need or want to eat out.

No problem. Today I’m sharing 5 tips for dining out on any restricted diet, including the low iodine diet for radioactive iodine treatment.

Look at Menus Before You Go

Most restaurants have a website with their menu listed. If it is a large chain restaurant, the nutrition information will be available online. Any restaurant with more than 20 locations is required to provide nutrition information, such as calories, etc. Since food allergies are quite common, most of those restaurants also provide the ingredient information as well. (Look for ingredients or allergen information).

By looking at the menu, you can see what you can eat a specific restaurant. Generally, this will still require some planning, which I’ll discuss more later. But maybe you don’t find anything. Then you can look for a different place to eat before you get there and everyone is hungry.

This isn’t fool proof but is a step. You can check if there are menu items you could customize – such as a salad with no cheese. Or maybe leave condiments off of a sandwich.

For the low iodine diet, it is tricky. Often the menu will just list “salt” as an ingredient, and you have no idea what kind of salt they use. Maybe you will get lucky and the site is like Chipotle, which states they only use kosher salt. But most do not. This leads us to our next tip.

Call Ahead

If the menu online isn’t clear, you can try calling the restaurant. Most sit-down restaurants will be able to tell you what ingredients they use. Fast food restaurants, may or may not provide you more information. Here are two conflicting examples.

Example 1: Chik-Fil-A lists “salt” as an ingredient for the chicken on their market salad. However, this chicken is not seasoned and prepared at the individual restaurant – it comes ready for them to heat. So your local Chik-Fil-A will not have more information than what is online.

Example 2: Five Guys lists “salt” as an ingredient for their french fries. That is something they add on location – they fresh cut the potatoes and season them in house. When I was on the low iodine diet in 2011, I called my local Five Guys. . When I asked at that time, they said, “We use regular iodized salt.” (Don’t take this as definitive for right now or your location.)

It never hurts to call ahead. Some restaurants may be able to make changes for a medically necessary diet and do no list it on their website. Especially if you need to go somewhere for an event, they will likely be able to work with you if you call ahead but may not be able to make something special on the fly.

Ask the Restaurant for a Special Order

This is a bit trickier with fast food. Many things come prepackaged or preseasoned for them. But you can always ask. Here are some examples:

  • salad with no cheese or meat
  • fries with no salt added
  • burger with only veggies, no bun

They may or may not be able to accommodate you. But it never hurts to ask.

This tip works even better at a sit down restaurant. They will be much more able and willing to accommodate your needs. But you should probably follow the previous two tips first.

My example for this happened in 2010. I was in graduate school, and my thesis advisor took all of her students out for a nice dinner at Christmas time. I had brought my own bread and salad dressing and planned to order a plain salad. However, our server was very nice and talked with the chef. They were able to cook me some pasta (they used kosher salt in the cooking water) and toss it with olive oil, fresh tomatoes, and some basil. It may not sound super delicious, but at the time, it was heavenly to me.

BYO…lots of things

It may seem weird to bring your own food to a restaurant, but it will likely be necessary when on the low iodine diet or other restrictive diets. I never had a problem with any restaurants since I was a paying customer and explained my dietary restrictions. If you are nervous, you can call ahead.

What should you bring? For the low iodine diet, homemade bread, salad dressing, and plastic silverware were the most common items for me.

Again, I was a paying customer. I would buy a salad from the menu (with high iodine ingredients removed), then use my own dressing and eat my own bread if I brought it to supplement the salad.

Eat Before, Drink and Snack There

If you need to dine out for work or social reasons but can’t control the location, you may not find much on the menu. Maybe the restaurant won’t work with you. Never fear.

I suggest you eat a more sustaining meal before hand. Then order a drink and a small item on the menu that you can eat – most places have fresh fruit or a side salad. You can still be present and participating in the “activity” of dining out, with less stress on actually finding food to eat to fill you up.

I hope these tips and tricks help you feel more confident about eating fast food on the low iodine diet or any restricted diet. Eating out is part of our everyday lives, so you have to find the best way to make it work for you.

Check out my review of fast food menus for specific items at 11 different fast food restaurants.

What to eat after thyroid surgery? Is a special diet required? How will I feel? Can food help me recover more quickly?

These are common questions leading up to thyroid surgery. You do not need the low iodine diet immediately after surgery, only for radioactive iodine treatment weeks to months after surgery. But you want to be prepared. What can you eat to help with post-surgery side effects and with a smooth recovery. Here are 5 tips for what to eat after thyroid surgery, along with lots of meal and snack ideas.

Soft Foods

Thyroid surgery requires anesthesia and being put on a ventilator.  After the surgery, people often have a sore, dry, or scratchy throat as a side effect from the breathing tube.  This is normal and will heal rather quickly.  Fatigue sets in as the anesthesia wears off and from the stress on your body of surgery.  Eating soft foods can help with both of these.  Soft foods will not irritate an already sore throat and require less energy for chewing. 

Examples of Soft Foods to Eat After Thyroid Surgery

  • scrambled eggs
  • peanut butter and jelly sandwich
  • grilled cheese sandwich
  • yogurt
  • oatmeal
  • ice cream
  • smoothies
  • shakes
  • mashed potatoes with gravy
  • pasta with smooth marinara sauce or alfredo
  • soup – tomato, chicken noodle, vegetable, minestrone, etc
  • pudding

Cold Foods

Many people often experience a low-grade fever after surgery. If this is a low grade fever in the first three days after surgery, it is likely related to the stress on the body, inflammation from the surgery, and exposure to the body of outside materials during the surgery. Also, some medications can also have a side effect of fever you receive may also have a side effect of fever. Eating something cold can help you feel less uncomfortable if you do have a non-serious post operative fever.

Please note: You should always contact your doctor if you experience any fever after surgery. They will be the best judge if this is a normal post-operative response or a sign of infection or other issues.

While I did not have a fever, I felt very warm after both of my surgeries. The compression socks they place on your legs after surgery can make you feel hot. Hospitals are often kept on the warm end of the temperature spectrum as well.

Cold foods can often soothe an irritated throat, as described above.

Examples of Cold Foods to Eat After Thyroid Surgery

  • yogurt
  • ice cream
  • popsicles
  • smoothies
  • shakes
  • thawed frozen fruit
  • jello

Protein Rich Foods

Your body needs protein to heal after surgery. Remember, protein is the building block of all tissues in the body, so you need it to heal, form new skin/scar tissue, etc. Generally, most of us eat more than enough protein in our regular lives. However, with the fatigue and decreased appetite experienced after surgery, you should focus on protein rich foods to ensure you are getting the nutrition you need.

Examples of Protein Rich Foods to Eat After Thyroid Surgery

  • meatballs
  • peanut butter sandwich
  • cheese sticks
  • yogurt
  • smoothies
  • chocolate milk
  • tuna salad
  • chicken salad
  • scrambled eggs
  • refried beans

Snacks

Managing pain is key for a smooth recovery. Staying on top of pain medication is key. However, many pain medications can irritate the stomach and need to be taken with food. You don’t want to eat a full meal every 4-6 hours with your medication, so having snacks ready is incredibly helpful.

Frequent snacking also helps with fatigue. It can feel less exhausting to eat a small snack. Also, people often feel a boost of energy after eating small snacks versus sleepiness after a large meal.

A good snack will balance some protein for fullness and carbohydrates for quick energy.

Examples of Snacks to Eat After Thyroid Surgery

  • yogurt with berries
  • half of a sandwich
  • cheese and soft crackers
  • graham crackers in milk
  • banana with peanut butter
  • pudding

Fluids

It can be easy to get dehydrated after surgery. You aren’t moving around as much, so you don’t think about drinking water. You are tired, so getting up to go to the bathroom feels exhausting. During your hospital stay, you often receive IV fluids. It can take you a few days to get all of that out of your system – so you may feel like you are going to the bathroom all the time even though you are not drinking fluids now.

Feeling warm or feverish, as mentioned above, can also increase your need for fluids. Additionally, fluids can help flush out medications received during surgery.

Ways to Increase Fluid Intake After Thyroid Surgery

  • Bring home the hospital water jug and set a goal for how often to drink all of it (depending on the size).
  • Have fluid focused meals or snacks – smoothies, jello, soup, watermelon.

I hope you find some helpful tips to help what to eat after thyroid surgery. As you can see from the lists above, many foods appear on several lists. Yogurt, smoothies, pudding, soft fruit, and soup are just a few. I’ll be posting some recipes in the next weeks to help. I highly suggest you plan ahead with food ready-to-eat or requiring little preparation before hand. Let me know what you find helpful after your thyroid surgery.

My blog is unique in that I am a health care professional AND a thyroid cancer survivor. I understand what you are experiencing.

Here is my thyroid cancer story.

Family History

Growing Up

My mother had thyroid cancer when she was 19. She had her thyroid removed and went through radioactive iodine treatment. My entire life she was on thyroid medication, and I always knew about her scar. I didn’t understand the concept of “surgery”, so I conjured a story that a wicked person had tried to cut her head off and then sew it back on.

My mother’s scar, 15+ years after surgery

Thyroid cancer, especially non-medullary thyroid cancers, run in families and occur at younger ages, according to www.cancer.gov. The exact genetic causes are not fully understood. Thyroid cancer is much more common in women. I have since learned that several women in my mom’s family (mother, sister, cousins, etc.) have had thyroid issues over time. So I was at increased risk for thyroid cancer.

When I was in middle school, mom had to switch endocrinologists. Up to that point, doctors had kept her labs at a fairly hyperthyroid levels. It isn’t standard practice now to do this for that long after surgery. According to the American Thyroid Association treatment guidelines, current recommendations are to suppress thyroid stimulating hormone (TSH) for 5 years, at levels around 0.1 mU/L for for those with high risk disease but a good response to treatment. After that point, with no evidence of continuing disease, TSH suppression should be eased to the low normal range, about 0.5 to 2 mU/L with continued monitoring.

Clearly this is not what had happened for my mother. Her new doctor drastically cut her medication. I remember years of her struggling with weight, coldness, and fatigue. She felt hypothyroid all of the time, despite having normal labs. Our whole family felt the effects until she adjusted after a few years.

Genetic Testing

During my last year of undergraduate studies, my mother was diagnosed with metastatic breast cancer with a poor prognosis. So I chose to spend the summer of 2009 with her before I headed to my dietetic internship and graduate school..

During that summer, my mother pursued genetic testing. She had a prior history of breast cancer, and so did several of her family members. The genetic counselor suggested she do the BRCA gene testing as well as testing for Cowden disease, which shows a link in thyroid and breast cancers. No tests found a genetic link for her cancer.

Diagnosis

In the summer of 2010, I started having strange dizzy spells lasting for an hour or two at a time. It was distressing since I lived alone at the time. After a few months, my mom told me I needed to go see a doctor.

I saw a family practice doctor. As part of the physical exam, the doctor asked to watch me swallow. He noticed a small lump in my neck, like a second Adam’s apple to the right side that was noticeable when swallowing only. He suggested a neck ultrasound. However, with my family history, I requested a referral to an endocrinologist.

Referral to an Endocrinologist

In September 2010, I had my first visit with my endocrinologist, who ordered blood work, an ultrasound, and a biopsy. His initial opinion was that it was not cancer, but did not rule out surgery. My estimated cancer risk was 4%.

Biopsy

The biopsy proved difficult because my nodule was filled with fluid. The nodule also had lots of calcifications, which unfortunately is not clearly diagnostic for cancer or not. The biopsy results were “atypical”. Essentially, the cells were not normal but also not clearly cancer. My estimated cancer risk increased to 10%. The recommendation was to wait three months and try a more intensive biopsy, with a pathologist in the room making sure clear results were obtained.

Referral to Surgeon

However, my parents were concerned about waiting that long just for another biopsy. So I went back to the endocrinologist. Because my nodule was large (3.1 cm), it could almost be recommended for surgery regardless of the biopsy results. Given my family history, he referred me to a surgeon.

At my initial visit with the surgeon, he did an ultrasound, another biopsy of the nodule, and a biopsy of a nearby suspicious lymph node. The decision was to perform a right hemithyroidectomy, since the left side had no evidence of nodules. However, a biopsy would be taken during the surgery to determine if it was cancer. The surgery would then evolve into a total thyroidectomy.

Prior to the surgery, the surgeon’s biopsy resulted in a positive cancer diagnosis. So I prepared for a total thyroidectomy surgery the first week of November 2010.

Total Thyroidectomy Surgery

Pre-surgery

To prepare for surgery, I arranged with my internship to be gone for a week. My mom came to town to help me.

The pre-op wasn’t bad. The surgeon came and drew lines on my throat to see where would be the most attractive and safe place for my surgical incision. We reviewed that it would be a total thyroidectomy as well as removing some lymph nodes around my thyroid. Off to surgery I went!


Lines surgeon drew on my neck before surgery

Post-surgery

My hospitalization immediately post-surgery was harder than I had anticipated. I spent a very long time in the recovery room. Once I finally reached my room, it was difficult to sleep with all the medications I had received. My neck was also very sore. My operation had ended up being 4 hours long as they had to remove 10 lymph nodes besides my thyroid. All 6 of the lymph nodes removed from the right side of my neck tested positive for cancer. The remaining 4 on the left side were negative. After a rough night in the hospital, I went home.


Day after surgery

Recovery

At home, recovery was a mixed bag. Unfortunately, the pain medication made me vomit no matter what I tried. My neck and shoulders were incredibly tight and difficult to relax. Swelling at my surgery site concerned me, but the doctor said it was normal. After a week, I felt well enough to return to classes and hospital rotations. I even defended my master’s thesis exactly 2 weeks after surgery.


Scar and swelling 5 days after surgery

One difficult part of the recovery was my scar. While much smaller than my mom’s scar, it was fresh and quite noticeable. I had a few patients I met in the hospital somewhat rudely ask, “What happened to your neck?” At the time, their comments hurt as I was very self-conscious. But once I explained, they apologized. I had to realize they were not themselves as they were going through difficulties requiring hospitalization. And the brightness of the scar started to subside.

Radioactive Iodine Treatment

Low Iodine Diet

Starting the week after Thanksgiving 2010, I had to begin the low iodine diet. When my doctors first mentioned it, I was not concerned. I was in graduate school to be a dietitian after all; I knew I would be fine. However, I quickly learned that information on the iodine content of foods was not easily available.

Furthermore, I was single, living alone. Preparing very specific recipes and food for one person was time consuming and frustrating. Trying to eat out with friends and attending holiday parties was difficult.I quickly learned to make my own bread, eat nut butter sandwiches (something I had never done to this point), eat lots of salad, enjoy fruit for dessert, and take my own salad dressing to restaurants. I even had to teach a cooking demonstration for fifty people where I couldn’t eat any of the food.

Thyroid Hormone Withdrawal

Besides the hassle of the diet, I had to completely withdraw from synthetic thyroid hormone for 3 weeks. That was miserable! I was physically exhausted. I actually lost weight because I felt so sick I could barely eat. Dramatic mood swings made relationships difficult. During this whole time, I was dating my now-husband. I remember sitting at work feeling absolutely in love. Two days later on a date, I hated him and never wanted to see him again. He was incredibly supportive and gave me “cancer cards” (actual, literal cards that said “Cancer Card” that I could use to get out of things I didn’t want to do) and claimed to like my sassy attitude. But I didn’t.

Radioactive Iodine Uptake Scan

First up in my radiation treatment was a radioactive iodine uptake scan. I drank a small dose of radioactive iodine before having a scan to see what traces of cancer remained. No isolation was required, but I needed to be cautious around pregnant women and young children. This led to an awkward conversation with the nail technician as some friends and I got end of semester pedicures.

Radioactive Iodine Treatment

On December 10, I received my treatment dose of radioactive iodine. The hospital did give me anti-nausea medication, as vomiting the radioactive iodine drink is a pain to clean up. I felt really sick after. I drove myself home and commenced my five days of isolation.

Well, almost-isolation. That afternoon, I discovered my bathroom sink was leaking in the cabinet underneath. Maintenance came to fix it quickly, thank heavens. But I had to talk to him through the doorway and tell him to stay as far away from me as possible; difficult, since I lived in a studio apartment. I must have looked as awful as I felt, because the maintenance man offered to pray for me.

My aunt and uncle also came to town for my radiation. They came once a day for the weekend for about an hour to check on me. We would chat while they sat across the apartment from me. The nurse in charge of my care said this would be OK since they were older and had low other risk factors. It was also helpful as I ended up needing some things from the store to deal with the side effects of radiation.

The biggest side effect I suffered from the radiation was dry mouth. Your saliva glands can absorb the radioactive iodine, causing some inflammation if it sits there. You want to stimulate saliva so it can work out the radiation. Radioactive iodine can also change the acidity of your saliva causing dental problems. The nurse told me to drink lots of water and suck on lemon candies. Ice chips helped as well.

The other main issue I had during this time was constipation due to being so hypothyroid. I drank a ton of water, took stool softeners, ate high fiber foods, everything they tell you to do. Once I was able to start thyroid hormone replacement again, this symptom quickly resolved.

After five days, I came out of isolation carefully. I was able to go out for lunch with a friend – bringing my own plastic utensils and salad dressing. I also saw movies one afternoon just to get out of my studio apartment. This was challenging because anytime a woman of possible child bearing age entered the theater I had to move away from that area. But the change of scenery was good.

Recovery

After seven days, I got my post-radiation scan and drove home for Christmas break. My dad and I then drove cross-country to my brother’s home for the actual holiday. I had to sit as far away from him as I could during the drive. At my brother’s house, I had to limit my time with my nieces and nephews. I had been so excited to be done with the low iodine diet that I was planning the things I would eat – pizza, Chinese food, ice cream, chocolate. But for over a week after isolation, I still felt so sick that nothing tasted right.

Eventually, things started coming around. My thyroid replacement medicine was increased. My hair stopped falling out, and I stopped losing weight. I started feeling like a human again. I even found time to get engaged and married.


Wedding photo with scar 8 months after surgery

Radioactive Iodine Round 2

In September 2011, my thyroglobulin labs had a weird bump. Thyroglobulin is a protein made by thyroid cells and is used as a marker for cancer after thyroidectomy. The increase in thyroglobulin was concerning for a cancer recurrence. My doctor ordered radioactive iodine scanning and possible treatment.

Low Iodine Diet, Again

This time around, the low iodine diet was a bit easier, since I had done it before. The trickier part was that I was married now and cooking for two people. . Also, I got to celebrate a low iodine birthday. My husband made homemade tortillas so I could enjoy a taco party with friends. And the cake actually wasn’t half bad.

Thyroid Hormone Withdrawal, Again

Thyrogen is a drug patients can take to simulate thyroid hormone withdrawal without actually going off medication. The hospital told me that I “did not qualify” for this drug. So I had to go off medication, again. I was still lethargic and decreased appetite. But it wasn’t as hard as previously.

Radioactive Iodine Uptake Scan

In October 2011, my scan came back clear. However, the ultrasound showed an enlarged lymph node on the lower right side of my neck.

Biopsy, Again

My surgeon attempted a biopsy of the lymph node, but it was difficult to reach. The biopsied tissue came back benign. My subsequent blood tests all came back normal. None of my doctors were concerned.

In the following years, I got pregnant, had a baby girl, and moved from Chicago to Colorado. When it came to transferring my care, I didn’t do much research. I just found the university health system in the area. I had worked with university health systems and found them to be up to date and good places to receive care.

Recurrence

Ultrasound

In January 2014, I had my annual neck ultrasound, which detected a large lymph node on the left side of my neck. The doctor recommended a biopsy. Thus begins the wild ride of my cancer recurrence story.


My barely visible scar 3 years after surgery

My mom never received any monitoring besides thyroid labs after her initial treatment. She never had issues with thyroid cancer again. With that background, I felt the monitoring was a waste of time and money. Give me my thyroid hormone and let me move on. Even the lymph node did not concern me.

Biopsy

But I went for the biopsy anyway. Imagine how happy I was when the doctor came in and said, “We can’t actually biopsy that lymph node due to its location. But there are lymph nodes on the right side we can biopsy instead.” After the biopsy, I went home frustrated and confused.

Imagine my further frustration and confusion when I was notified a few days later that the biopsy came back positive for cancer. She referred me to a surgeon. I was not excited.

Referral to Surgeon

My skepticism and bad attitude followed me to the surgeon. I listened to everything he had to say, and we tentatively set a date for surgery – a right lateral neck dissection. In non-medical terms, he would reopen my original incision and then go up the right side of my neck, removing any lymph nodes he could find – cancerous or not. A few days later, I decided to cancel the surgery since I thought he had said surgery was not necessary.

Indecision

Many phone calls followed. The surgeon called me to explain that no, I really needed surgery. I called my surgeon in Chicago to ask for a second opinion. That surgeon confirmed he would operate to remove the cancerous lymph node, but not do a full neck dissection.

I fumed for a couple weeks. Thyroid cancer is the good cancer; people don’t die from it that often. The survival rate for papillary thyroid cancer is near 100%. I definitely didn’t want to have surgery.

Finally, my endocrinologist called and explained that surgery really is the recommended course of action. She would not recommend postponing it longer than six months. Her logic convinced me, so I rescheduled for after Easter 2014.

Neck Dissection

Pre-surgery

This surgery was different. They gave me a patch behind my ear to help with nausea. The surgery involved a lot of delicate work around nerves controlling my speech, mouth, swallowing, etc. Sensors placed on my nerves would alert the surgeon if things went wrong. I was also nervous, as the surgeon said recovery from this would be worse.

Post-surgery

Initially, he wasn’t wrong. I woke up in pain. I had a drain out of my neck which was awkward and uncomfortable. Between an uncomfortable hospital bed and a roommate who yelled in her sleep, I didn’t sleep much after the surgery.


After neck dissection surgery; yes that is a smile.

I’ll never forget the surgeon’s words the next morning: “Do you want to stay here and be miserable or go home and be miserable? If it was me, I’d go home to my own bed.” I took his advice and went home, thanks to a patient husband who learned all about the drain care.

Recovery

Recovery from this surgery wasn’t as hard, despite the surgeon’s warning. It helped I remembered all the shoulder pain from before. I frequently forced myself to relax my shoulders and neck. Really, the only bad part was the drain. I was able to get that out after about 5 days, and then had no pain or issues.


Neck dissection scar 5 days after surgery

At my post-operative visit, the surgeon informed me that he had removed 22 lymph nodes from the right side of my neck. However, the only lymph node that tested positive was from my lower neck – the one biopsied way back in 2011. He did a neck ultrasound prior to surgery, saw the nodes as he took them out, and noted they looked bad. His only thought was that the nodes were very cystic and likely collapsed when they tried to get a sample. Therefore, the pathologist was not able to run a good test on the tissues.

Despite all my skepticism going into all of this, I felt complete peace through his explanation. I trust him that he got the nodes and it was a fluke in the pathology testing.

Radioactive Iodine Round 3

Low Iodine Diet…AGAIN

Then the joyful news of needing the low iodine diet for a radioactive iodine scan…again. Like everything else in this round of treatment, I went in with a bad attitude. I was now preparing food for my husband, daughter, and myself. I didn’t want to force them on low iodine but also didn’t want to make lots of different food. Once I got going though, I found having to cook real meals for my family forced me to be creative and look for ways to eat delicious, low iodine food, rather than just survive the three weeks.

Thyrogen

I took thyrogen instead of going through thyroid hormone withdrawal. For this, I went in for one shot, once a day in the two days before my scan. So much more pleasant than all the side effects I’ve mentioned before.

Radioactive Iodine Uptake Scan

Great news this time around, too. No uptake on my radioactive iodine scan. Hopefully, this means I really have no thyroid cancer left in my body.

Life Now and Going Forward

Now what happens in my thyroid cancer story?


Scars 6 years after neck dissection

Since my recurrence, I’ve had yearly ultrasounds and regular blood work. Everything has looked good.

I have successfully gotten pregnant and delivered three more full-term babies. Dealing with my thyroid hormone levels during pregnancy and breastfeeding was an adventure. The one plus was I quickly lost my post-baby weight. My endocrinologist always wanted to gradually bring my pregnancy doses down post-birth to make sure I could have a good breastmilk supply. With my third baby, I was at my pre-pregnancy weight within two weeks. Gotta look for the positives.

I have discussed with two different endocrinologists that I will not consider further radioactive iodine treatments or scans. Since I have had two clear scans, especially the one in 2011 when I had cancer in me, I feel that they are not effective in monitoring my cancer. They have been agreeable and suggested PET scans for any further cancer suspicions.

For now, I’m considered a low risk. After being cancer free for five years, my thyroid replacement doses are lower. My TSH goals are no longer down to .01 mU/L, but more in the low normal range. So far, I haven’t noticed a big difference in how I feel.

How do I use my thyroid cancer story? First, I want to help those close to me. I’ve shared recommendations with my immediate family members on what they should do to monitor their thyroid health. I try to be mindful of my children getting thyroid collars when exposed to x-rays. As my children get older, I will make sure they receive neck exams.

Second, I have this blog. I want to share my experiences as well as any knowledge I have gained to make your thyroid cancer story be a success. Even if I’m just here to validate your story, that is a win. I have multiple friends that have had thyroid cancer. We are sounding boards for each other and a support group.

You are not alone. We all have our thyroid cancer stories and can build up and help each other.

Want more support?

I have a Facebook group for thyroid cancers survivors: Thyroid Cancer Survivors Nutrition and Diet Support Group. Click on the link, answer the questions, and join us!